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Elements of
Ethical Care
for Patients at the End-of-Life
In the last phase of life people seek peace and dignity. To help realize
this, every person should be able to fairly expect the following from
physicians, health care institutions, and the community.
- The opportunity to discuss and plan for end-of-life care.
This should include: the opportunity to discuss scenarios and treatment
preferences with their personal physician and health care surrogate, the
chance for discussion with others, the chance to make a formal "living
will" and surrogate designation, and help with filing these documents in
such a way that they are likely to be available and useful when needed. (Click
here to access living will and surrogate designation forms.)
- Assurances that physical and mental suffering will
be carefully attended to and comfort measures intently secured.
Physicians should be skilled in the detection and management of terminal
symptoms, such as pain, fatigue, and depression, and able to obtain the
assistance of specialty colleagues when needed.
- Trustworthy assurance that preferences for withholding or
withdrawing life-sustaining intervention will be honored. Whether
the intervention be less complex (such as antibiotics or artificial
nutrition and hydration) or complex and more invasive (such as dialysis or
mechanical respiration), and whether the situation involves imminent or
more distant dying, patients’ preferences regarding withholding or
withdrawing treatment should be honored in accordance with the legal and
ethical rights of patients.
- Assurance that there will be no abandonment by the physician.
Patients should be able to trust that their physician will continue to
care for them when dying. If a physician must transfer the patient in
order to provide quality care, that physician should make every reasonable
effort to continue to visit the patient with regularity, and institutional
systems should try to accommodate a patient's desire for such care.
- Assurance that dignity will be a priority. Patients
should be treated in a dignified and respected manner at all times.
- Assurance that burden to family and others will be minimized.
Patients should be able to expect sufficient medical resources and
community support, such as palliative care, hospice or home care, so that
the burden of illness need not overwhelm caring relationships.
- Attention to the personal goals of the dying person.
Patients should be able to trust that their personal goals will have
reasonable priority whether it be: to communicate with family and friends,
to attend to spiritual needs, to take one last trip, to finish a major
unfinished task in life, or to die at home or at another place or personal
meaning.
- Assurance that care providers will assist the bereaved through
early stages of mourning and adjustment. Patient and their loved
ones should be able to trust that some support continues after
bereavement. This may be by supportive gestures, such as a bereavement
letter, and by appropriate attention to/referral for care of the increased
physical and mental health needs that occur among the recently bereaved.
Adapted from the
American Medical Association
September 2002
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